Autism
Autism Council of Utah
An independent council working to foster collaboration, communication, and learning among families and agencies through the promotion of access to resources and responsible information for individuals who have or are affected by autism or related conditions.
Autism Information Resources at the Utah Parent Center
The Utah Parent Center received resources and a lending library from the Autism Society of Utah when it closed in 2003 to assist families of individuals with autism spectrum disorders. When parents call the Center, they can expect to receive information on autism spectrum disorders, peers support, and access to various resources.
Autism Speaks
At Autism Speaks, their goal is to change the future for all who struggle with autism spectrum disorders. They are dedicated to funding global biomedical research to the causes, prevention, treatments, and a cure for autism spectrum disorders. They also raise public awareness about autism and its effects on individuals, families and society and help bring hope to all who deal with the hardships of these disorders.
Unlocking Autism
Unlocking Autism is dedicated to bringing the issues of autism from individual homes to the forefront of national dialogue. They work to join parents and professionals in one concerted effort to fight for individuals with ASDs.
URADD
Run by the State Health Department, URADD website and brochures provide information about ASD and links to local resources.
US Autism and Asperger Association, Inc. (USAAA)
US Autism and Asperger Association is a nonprofit organization for Autism and Asperger education, support, and solutions. Their goal is to provide the opportunity for individuals with autism spectrum disorders to achieve their fullest potential.
Utah Autism Foundation
The Utah Autism Foundation is a nonprofit organization formed to identify and support research on both a local and national level into the cause, prevention, and potential treatment of autism.
Utah F.E.A.T.
F.E.A.T. = Families for Effective Autism Treatment
Utah FEAT is dedicated to providing education, support, and guidance to Utah families of children on the autism spectrum and to enhancing the community of professionals and educators serving those areas.
Walk Now for Autism Utah
Walk Now for Autism is the nation’s largest grassroots autism walk program. Events are held annually in Utah.
ADD/ADHD
Attention Deficit Disorder Association (ADDA)
ADDA is the world’s largest organization for adults with AD/HD. Their new website has been built to meet the needs of our membership and our visitors. It reflects ADDA’s mission to provide information, resources and networking to adults with ADHD and to the professionals who work with them.
CHADD of Utah
CHADD is an all-volunteer organization dedicated to being your source for ADHD issues such as: school, teachers, children, adults, women, girls, work, accommodations, diagnosis, resources, family, marriage, and couples. Visit their website to obtain a list of your local “branch schedules”, community resources, frequently asked questions, suggested reading, as well as lots of various other resources.
Cerebral Palsy
NICHCY Cerebral Palsy Resources
The National Dissemination Center for Children with Disabilities (NICHCY) offers brief, but detailed fact sheets on cerebral palsy. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.
United Cerebral Palsy (UCP) of Utah
The mission of UCP is to advance the independence, productivity and full citizenship of people with Cerebral Palsy and other disabilities.
Deaf/Blind
NICHCY Deafblindness Resources
The National Dissemination Center for Children with Disabilities (NICHCY) offers brief, but detailed fact sheets on Deafblindness. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.
Developmental Delay
NICHCY Developmental Delay Resources
The National Dissemination Center for Children with Disabilities (NICHCY) offers brief, but detailed fact sheets on Developmental Delays. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.
Developmental Delay Resources (DDR)
A nonprofit organization dedicated to meeting the needs of those working with children who have developmental delays in sensory motor, language, social, and emotional areas. DDR publicizes research into determining identifiable factors that would put a child at risk and maintains a registry, tracking possible trends. DDR also provides a network for parents and professionals and current information after the diagnosis to support children with special needs.
NICHCY Developmental Delay Resources
The National Dissemination Center for Children with Disabilities (NICHCY) offers brief, but detailed fact sheets on Developmental Delays. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.
Developmental Delay Resources (DDR)
A nonprofit organization dedicated to meeting the needs of those working with children who have developmental delays in sensory motor, language, social, and emotional areas. DDR publicizes research into determining identifiable factors that would put a child at risk and maintains a registry, tracking possible trends. DDR also provides a network for parents and professionals and current information after the diagnosis to support children with special needs.
Down Syndrome
NICHCY Down Syndrome Resources
The National Dissemination Center for Children with Disabilities (NICHCY) offers brief, but detailed fact sheets on Down syndrome. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.
Utah Down Syndrome Foundation (UDSF)
The UDSF is a Utah non-profit organization that provides outreach, training, counseling, support, education, information, and activities for individuals with Down syndrome, their parents and families, and the community.
National Down Syndrome Society
NDSS offers authoritative information about Down syndrome, including a new parent video, A Promising Future Together: A Guide for New Parents of Children with Down Syndrome.
National Down Syndrome Congress
NDSC is also an authoritative source of information on Down syndrome, offering such resources as its New Parent Package, a collection of materials refined over years to provide new and expectant parents with an initial understanding of the challenges— and joys—of raising a child with Down syndrome.
Emotional Disturbance
NICHCY Emotional Disturbance Resources
The National Dissemination Center for Children with Disabilities (NICHCY) offers brief, but detailed fact sheets on Emotional Disturbance. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.
Allies with Families
Allies with Families was created in 1991 to offer practical support and resources for parents and their children and youth who face serious emotional, behavioral, and mental health challenges. It was created to support all families in the state of Utah. Allies with Families knows what you are going through because we have been through similar experiences. They know parents are sometimes stigmatized when they have a child with these disabilities. No one should have to go through a crisis alone. They have learned how to locate services and support. We know how hard it can be to get support and information that pertains to our children. They are here to share this knowledge with you. Allies with Families is a Utah chapter of the Federation of Families for Children’s Mental Health, an organization of families supporting families by sharing experiences and strengths.
NAMI Utah (National Alliance on Mental Illness)
NAMI is a nonprofit, grassroots, self-help, support and advocacy organization of consumers, families, and friends of people with severe mental illnesses, such as schizophrenia, schizoaffective disorder, bipolar disorder, major depressive disorder, obsessive-compulsive disorder, panic and other severe anxiety disorders, attention deficit/hyperactivity disorder, and other severe and persistent mental illnesses that affect the brain.
New Frontiers for Families
New Frontiers for Families mission is that through the Wraparound process to bring providers, educators, businesses, community leaders and neighbors together in order to empower families to succeed at home, at school and in their communities by listening and working together to create services and supports that meet their needs.
Mental Health Matters
Get Mental Help, Inc., the new owner of Mental Health Matters, was founded to supply information and resources to mental health consumers, professionals, students and supporters. While the percentage of people facing a diagnosable Mental Disorder in any given year is substantial, the acceptance of these problems can be hard to come by. Essentially, Mental Health Issues are hidden illnesses. The need for an anonymous avenue for consumers and supporters to gather information very real and very large and Mental Health Matters is attempting to help.
Epilepsy
NICHCY Epilepsy Resources
The National Dissemination Center for Children with Disabilities (NICHCY) offers brief, but detailed fact sheets on Epilepsy. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.
Epilepsy Association of Utah
The Epilepsy Association of Utah is dedicated to providing education and support services for individuals and families dealing with the many challenges of Epilepsy.
Hearing Impairment
NICHCY Hearing Impairment, including Deafness Resources
The National Dissemination Center for Children with Disabilities (NICHCY) offers brief, but detailed fact sheets on Hearing Impairments, including Deafness. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.
Utah Schools for the Deaf and the Blind (USDB)
Their mission is to provide high quality direct and indirect education services to children with sensory impairments birth through 21 years of age and their families in Utah.
Utah Division of Services for the Deaf and Hard of Hearing
Visit their website to find out more about deaf and hard of hearing services, community events and outreach programs.
Utah Hands & Voices
Utah Hands & Voices is dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We’re a parent-driven, non-profit organization providing families with the resources, networks, and information they need to improve communication access and educational outcomes for their children. Our outreach activities, parent/professional collaboration, and advocacy efforts are focused on enabling Deaf and Hard-of-Hearing children to reach their highest potential.
Alexander Graham Bell Association (AG Bell)
The staff at AG Bell is dedicated to promoting communication for people with hearing loss.
Intellectual Disability
NICHCY Intellectual Disability Resources
The National Dissemination Center for Children with Disabilities (NICHCY) offers brief, but detailed fact sheets on Intellectual Disabilities. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.
Utah Developmental Disabilities Council (UDDC)
The UDDC’s mission is to be the state’s leading source of critical, innovative and progressive information, advocacy, leadership and collaboration to enhance the lives of individuals with developmental disabilities.
Division of Services for People with Disabilities (DSPD)
Utah’s DSPD promotes opportunities and provides support for persons with disabilities to lead self-determined lives. They oversee home and community-based services, supported employment services and support for people with disabilities and their families.
Family to Family Network
The Family-to-Family Network is a network of local volunteer leaders and groups that provides education and support to families who have a member with a disability. The Network’s particular area of experience is in providing supports to families who are the waiting list for services from the Utah Division of Services for People with Disabilities.
Orthopedic Impairment
United Cerebral Palsy (UCP) of Utah
The mission of UCP is to advance the independence, productivity and full citizenship of people with Cerebral Palsy and other disabilities.
Utah’s Collaborative Medical Home Project
A Medical Home is not a building, house, or hospital, but rather an approach to providing health care services in a high quality and cost effective manner. Children and their families who have a medical home receive the care that they need from a pediatrician or physician whom they know and trust. The pediatric health care professionals and parents act as partners in a Medical Home to identify and access all the medical and non-medical services needed to help children and their families achieve their maximum potential. Visit this website to find out more about the Medical Home Project.
Shriners Hospital
The Intermountain Shriners Hospital is a 40-bed pediatric orthopaedic hospital providing comprehensive orthopaedic care to children at no charge. The hospital is one of 22 Shriners Hospitals throughout North America. The Intermountain Hospital accepts and treats children with routine and complex orthopaedic problems, utilizing the latest treatments and technology available in pediatric orthopaedics, resulting in early ambulation, and reduced length of stay.
Spina Bifida Association of America
The Spina Bifida Association of America (SBAA) serves adults and children who live with the challenges of spina bifida. Since 1973, SBAA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with spina bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.
Specific Learning Disability
NICHCY Learning Disability Resources
The National Dissemination Center for Children with Disabilities (NICHCY) offers brief, but detailed fact sheets on specific learning disabilities. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.
Learning Disabilities Association of Utah (LDAU)
LDAU is committed to a world where people with learning disabilities are valued and respected and their potential realized. LDAU is also committed to providing meaningful support that brings effective improvement to the lives of all people impacted by learning disabilities.
LD Online
LD Online is a service of WETA , Washington, D.C., in association with The Coordinated Campaign for Learning Disabilities. It is a leading web site on learning disabilities for parents, teachers, and other professionals.
Learning Ally
Founded in 1948 as Recording for the Blind, Learning Ally serves more than 300,000 K-12, college and graduate students, veterans and lifelong learners – all of whom cannot read standard print due to blindness, visual impairment, dyslexia, or other learning disabilities. Learning Ally’s collection of more than 65,000 digitally recorded textbooks and literature titles – downloadable and accessible on mainstream as well as specialized assistive technology devices – is the largest of its kind in the world. More than 6,000 volunteers across the U.S. help to record and process the educational materials, which students rely on to achieve academic and professional success. Learning Ally, a 501(c)3 nonprofit, is funded by grants, state and local education programs, and the generous contributions of individuals, foundations and corporations.
National Center for Learning Disabilities (NCLD)
NCLD works to ensure that the nation’s 15 million children, adolescents and adults with learning disabilities have every opportunity to succeed in school, work and life.
Information obtained from Utah Parent Center
© Motor Development Team